The story of Francesco (on going)

by Luca Catalano Gonzaga

Giovanni and Roberta live in Rome, are husband and wife and are both police officers. Their 8-year-old son, Francesco, suffers from a rare genetic disorder called Sotos syndrome that causes physical overgrowth and delayed development of mental and movement abilities. The child goes to school like all children, attends a music course and loves to go to the swimming pool. His life is slowed down by the the anti-epileptic drugs that have also conditioned his growth. Francesco is aware of his difficulties, but remains a sociable, self-sufficient and dynamic child. Over time, he has also learned how to relate to his peers, and has a small group of friends, but the effects of  his unusual gigantism are clear and it is hard to understand for people who meet him for the first time.

The photographer Luca Catalano Gonzaga will tell Francesco’s story through images in the project ‘One of a kind’ , with the aim of defeating the isolation of patients and their families, encouraging the detection of these similar rare cases around the world, so as to allow others with same characteristics to emerge from invisibility, to share common experiences and create a network with each other. (Text by Sebastiano Caputo).