This is the story of Alex, a 7 years old boy suffering from the X-Linked Reticulate Pigmentary Disorder with Systematic Manifestations, an extremely rare genetic disease of chronic and disabling nature, also known as XLPDR, its acronym.
This is the story of Alex, a 7 years old boy suffering from the X-Linked Reticulate Pigmentary Disorder with Systematic Manifestations, an extremely rare genetic disease of chronic and disabling nature, also known as XLPDR, its acronym.